Sunday, September 17, 2017

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He suffered. I know this. My OB told me "it would have been quick" but I know this cannot be true. You shouldn't lie to your patients, even if you think you are doing them a kindness. He was alone, he was scared, he suffered. I know this.

Friday, July 14, 2017

Figures

This week we were at a thrift store and I noticed this figurine


This is a scene which did not happen for us, with him either alive or dead. There is so much I could write about both those scenarios. 

A voice in my head says why don't I just see it as us with our daughter, a scene which did happen with her very much alive. But for me, it's just not. I don't need carved wooden representations of her because she is here with us. With her, I have the real thing every day.

The man and the woman are looking at the baby with love. Whether with smiles, laughter, anguish, or grief. I know that the love is what matters.

I bought the figurine and it sits with his ashes. I find it very difficult to look at but that doesn't mean I don't want it there.

Wednesday, March 15, 2017

Worthy

Yesterday I read an article about a hospital that trains its nurses on stillbirth. It sounded quite good because it was led by a bereaved mother. It was a difficult read because it reminded me of all the things that didn't happen after he was born, and all the things that remain a mystery to me. Other people cared for him, not his parents. This has remained a huge issue for me. I tried connecting with people at the hospital to find out more of his story but eventually I had to give up. The responses ranged from none, to aggressively defensive. I didn't have it in me to continue. When you're carrying hard things, sometimes you have to choose what to drop for self-preservation.

In the article, one nurse said she always puts diapers on stillborn babies (she called them "my stillborn babies", kinda ugh but ok fine, her heart is in the right place). She said it gives the babies "structure" if their bodies are fragile. All good. These are the unfortunate practicalities of handling dead bodies. But then she was quoted as saying, "I always like to tell parents how it will keep baby warm." I am kind of very creeped out by this. I've met people like this who patronize me as a bereaved parent. It comes across as so condescending and in this case it's also deceitful. Stillborn babies do not need to be kept warm. They need to be kept cool. There is no need to deceive parents about this. There is no need to say anything. Putting a diaper on a stillborn baby sends a profound message to newly grieving parents - that their baby is worthy of loving care, the same as any newborn baby. One of the things the article talks about is modeling. One of the best ways for healthcare staff to help parents reconnect with their baby after the trauma of stillbirth is to model holding and cuddling and caring for that baby. For the parents to see the nurses caring for their baby, or better yet to be able to do it themselves, is so important.

Did someone put a diaper on Toren? I might never know. I had some with me in my hospital suitcase. I had packed a few different sizes because with our daughter, we had only brought one size and she ended up being huge. Almost 10 lbs! The diapers we had brought wouldn't fit her. So this time I was prepared (for that anyway).

Saying all that, it's a really good article and should be widely shared. You can find it here: Why photos of stillborn babies matter.


I went on a bit of a twitter rant about it as I was reading it because it was really evoking some complicated feelings in me. I'm preserving it here, mostly for myself, but you can check it out if you want.

I do worry that all this focus on good bereavement services takes something away from the important work of preventing stillbirths in the first place. But that's for another time.

Proof

When I was pregnant with him I was taking piano lessons. I had always wanted them since I was a kid and was lucky enough to be able to do them at this point. I wasn't sure how I was going to be able to continue after he was born but I was hopeful that after getting settled into a routine with him I would be able to continue. After he was born, I never went back. Not for myself anyway.

Yesterday I was clearing out old books and I found my old piano notebook where my teacher would write my homework for the following lesson. I hadn't looked at it for over 5 years. Here was the last entry:


Sometimes I get incredibly sad when I get proof from the world that he is being forgotten. People say things to me that make me think (but almost never say), "Have you really forgotten I had a baby who died??" Because if they had remembered, they couldn't possibly say these thoughtless things to me.

I don't need proof that he lived. I carried him and delivered him and have his ashes. But still, when I get it, it's a wondrous thing. It's also a difficult thing. I think the biggest shock in this moment was seeing that exclamation point at the end. His death, and the circumstances of his birth, have almost completely taken over most of my memories of my pregnancy, which in addition was a difficult one. And I've been stuck with this secret, dreadful feeling that I was unhappy because of him. That maybe, deep down, I didn't actually want him. In time I've come to accept that I was in fact suffering physical effects from pregnancy which made me unhappy, and that I really was looking forward to meeting him and starting our lives with him. Here, in a notebook that only two people were ever going to see, was proof that I was excited. Written in an unguarded moment - an expression of love. 

Sunday, February 26, 2017

The Box


"What's in the box?"

My 8 year old asked me this question yesterday while getting ready for bed. What's in the "box" is of course her baby brother's ashes. She has known this from the beginning but we hadn't talked about it for a while. Sometimes it's hard to know if she is just starting a conversation or if she genuinely doesn't know. She likes us to tell her stories from our lives and sometimes she will ask about those stories in a way that makes it seem like she doesn't remember hearing them 500 times. This is a different kind of story. A difficult and complicated story. No happy ending. His ashes. Baby's ashes. They just seem like two words that should never go together. I felt a bit panicky. Does she really not remember?? It seems so unlikely given how open I have tried to be with her since he died. Regardless, I had to answer. I can't imagine saying, "Never mind that." or "Mind your own business." or trying to change the subject - "Have you brushed your teeth?" I know why people might do this but I just can't do it to her. I never could. It provokes feelings inside me, feelings from childhood, of being lied to. Of not being told when important things were happening. Of being betrayed. We want her to trust that we will tell her when important things are happening in and to our family. These are her stories too, and bad things happen when you cut people off from their own stories.

"Those are Toren's ashes. Remember?"

"Yes I remember." She gives me a big smile. Whew. Ok she remembers. Glad that's ov...
"Can I see them?"

I have not looked at his ashes in a long time. I didn't want to at that moment, but I have no objection to her seeing them if she wants. She is building her own narrative about him. It's going to take her her whole life and it will probably never be convenient for anyone.

The box where we keep his ashes is a wooden box with carved plumerias along the top. Three months after he was born we went to Hawaii. It ended up being a difficult trip because of course we thought we were leaving our grief behind but it snuck into all our suitcases, even the carry-ons, when our backs were turned. I was pretending to be a 'normal' person without a dead baby, looking at souvenirs, and came across these beautiful boxes. Because my old brain had been replaced by this new, grieving brain, my first thought was, "They look like little coffins." An interesting feature is that they are not easy to open. There's a trick to them. You have to remove several parts and there are actually two lids.

She asked what the bigger pieces were amongst the powdery looking substance.

"Bones."

And then the moment passed. We put the puzzle box back together. I think I would like to have a little plaque engraved with his name. I have this persistent low-level worry that the box is going to get stolen. You see that in the news sometimes. Someone breaks into a house looking for valuables and inadvertently steals someone's ashes. It would devastate me.

It's been 5+ years of surreal moments - difficult, amazing, dreadfully sad, fascinating, shocking, enriching moments. Moments that teach, if you can just hold on to the teetering landscape and see them through. This conversation with her will never end. I wouldn't want it to. She will have many more questions about her brother throughout her life, none of which I can with any honesty say I look forward to. And yet it brings a closeness between us, a realness. It's truly a privilege to help her navigate this sibling relationship. And it's what I would be doing anyway.

Tuesday, January 17, 2017